Find Your Nearest Patient Advocacy Group
ARGENTINA ↓
Associacion Niemann-Pick de Argentina
NP-Argentina.org
info@npcargentina.org
AUSTRALIA ↓
BELGIUM ↓
BOKS (Belgische Organisatie voor kinderen en volwassenen met een stofwisselingsziekte)
boks.be
BRAZIL ↓
CANADA ↓
Niemann-Pick Canada
niemannpickcanada.org
CHINA ↓
China Niemann Pick Disease Association
chinanpd@sina.cn
CROATIA ↓
Niemann-Pick Hrvatska Napravite donaciju za podrsku nosoji misiji I zajednici Niemann-Pick bolesti
https://nphr.hr/
niemannpickhr@gmail.com
FRANCE ↓
Vaincre Les Maladies Lysosomales (VML)
vml-asso.org
scientifique@vml-asso.org
Niemann Pick France
www.niemannpick-france.com
GERMANY ↓
Niemann-Pick Selbsthilfegruppe Deutschland e. V.
https://niemann-pick-selbsthilfegruppe.de/
info@niemann-pick-selbsthilfegruppe.de
INDIA ↓
Niemann-Pick India Charitable Trust
https://niemannpickindia.com/
niemannpickindia@gmail.com
ITALY ↓
Associazione Italiana Niemann Pick Italy
niemannpick.org
info@niemannpick.org
THE NETHERLANDS ↓
Volwassenen Kinderen en Stofwisselingsziekten (VKS)
stofwisselingsziekten.nl
info@stofwisselingsziekten.nl
NORWAY ↓
Niemann Pick Foreningen i Norge
Facebook Niemann Pick i Norge
PAKISTAN ↓
Lysosomal Storage Disorders Society Pakistan (LSDS) (associate member)
www.lsdpk.org
atif@lsdpk.org
POLAND ↓
Stowarzyszenie Chorych na Chorobe Niemanna Picka I Choroby Rzadkie (Niemann-Pick and Rare Diseases Association Poland)
https://stowarzyszenie-niemannapicka.org.pl/
SWITZERLAND ↓
NPSuisse
http://www.npsuisse.ch/
TAIWAN ↓
Taiwan Foundation for Rare Disorders (TFRD)
TFRD Home (tfrd2.org.tw)
tfrd@tfrd.org.tw
TUNISIA ↓
Association Tunisienne des Maladies lysosomales
ATML – Association Tunisiennee des Maladies Lysosomales
UNITED KINGDOM ↓
Niemann-Pick UK (NPUK)
npuk.org
info@npuk.org
UNITED STATE OF AMERICA ↓
National Niemann Pick Disease Foundation (NNPDF)
nnpdf.org
nnpdf@nnpdf.org
Wylder Nation Foundation
https://wyldernation.org/
Firefly Fund
fireflyfund.org
Global Niemann-Pick Initiatives
As well as our members, there are groups and organisations all over the world working in the field of NPD. We list the ones we know about here and we’ll be adding to it shortly.
If you’re not on this list, please do get in touch – we’d like to pull together a full picture of the global efforts that are ongoing towards supporting those affected by all types of NPD.
In the USA:
In the UK :
In Japan :
Rare Disease Umbrella Groups
There may not be a Niemann Pick specific support group in your country. The following links are for umbrella groups that provide support to people with Lysosomal Storage Disorders or with rare diseases in general.
Support the INPDA
Join our alliance, promote our work, become a sponsor, or make a donation. We’re eager to connect with individuals, organizations, and institutions worldwide dedicated to improving lives affected by NPD.
Let’s make a difference together!
