The International Niemann-Pick Disease Alliance (INPDA) is a global network of patient organisations dedicated to supporting individuals and families affected by Niemann-Pick diseases. Our member groups span across multiple countries, working together to drive awareness, provide essential resources, and advocate for improved care and research. By collaborating on an international scale, we ensure that no family faces the challenges of Niemann-Pick diseases alone, fostering a strong and united community. 

Each of our member organisations brings unique expertise and a deep understanding of the needs of those living with Niemann-Pick diseases. As a collective, the INPDA and its member groups strive to amplify the voice of the Niemann-Pick community on a global platform. We work together to advocate for policy changes, influence research priorities, and enhance access to care and treatments. Our strength lies in our unity—by bringing together patient organisations from around the world, we create a powerful network that drives meaningful progress in the fight against Niemann-Pick diseases.